Black Monday the 13th

>> 16 August 2012

The irony here would be that my black Monday is the Monday of my only week of holidays. Perhaps it falling on the 13th of the month has a lot to do with the unpleasantness it brought on today.

Its been four years since she had been diagnosed with kidney failure and  began her dialysis treatment. Throughout the four years, we had always hoped things would get better, that one day she would come out of it. There have been some bad days before but things have been pretty smooth until the beginning of this February. Till date, nobody can point out what exactly went wrong, how it happened or why. All we know is that at this stage, she is in end stage renal failure and also, she has some cardiac complications. She was advised for pacemaker implant in February but given her tender age and small physique, the cardiologist thought it best to continue with the conservative management for now. Her dialysis sessions are on Tuesday, Thursday and Saturday, the problem usually sets in on Sunday evening as there is a two day gap. The common scenario on Monday night would be one where she suffers from a continuous productive cough throughout Monday night, depriving her of a sleep, resulting in severe chest cramps. Vomiting phlegm was frequent and painful, and  Occasionally, she would have cramps in the calves . But that was the extent of it. This week however, it got way more intense.

She no longer sleeps on a bed, she sleeps on the arm of a couch in the hall with head raised and rested on 4-5 pillows (orthopnea) . Since I was back home, I slept in the hall with her as she is known to wake up at night with attacks of breathlessness( PND). That morning about 7, she woke up, coughing, almost chocking and said she cant breathe. She could barely speak , her chest muscles were all tight , her breathing was really shallow and rapid about 38 breaths per minute. She even coughed out pinkish frothy sputum for the first time that morning.  Soon to follow were the leg cramps and at this time, she was so weak she couldnt even get up from the lying position. Though she wasnt scheduled for a session, we rushed her to the dialysis center in GH hoping they would spare her a slot however, for birocratic purposes they told us to get her first admitted in casualty. Knowing that would only delay her access to a dialysis session, we brought her to Mawar Center but recived a call from the hospital about 15 minutes later that the specialist in GH insist on seeing her in the casualty.

Upon returning back to the casualty, she was wheel chaired in and given a bed. Her vitals were monitored. And for "formality " purpose, they inserted a canulla ( painfully ) to draw blood. Before anything could happen, some retarded  bitch just threw the heavy white blanket over her and it kinda displaced the canulla. She was already in much distress but once this happen, she began to cry , in pain and I just yelled at all who were attending to her. Im not one to make a scene, sober, but this is just way over the line for it to happen in the A&E in a well established General Hospital. They had the nerve to ask me to leave , I just told them if they can act so carelessly with my sister right in front of my eyes, who knows what rubbish thwy would do in my absence.The pediatrician managed to get her the slot in the dialysis center. and she was sent from the casualty to the dialysis center via ambulance. 

She felt a lot better after the two hour session of dialysis but that wasn't the end of our problem. With her symptoms as well as apex beat severely displaced, she is suspected to be suffering from dilated cardiomyopathy, at the age of 14. Till date the cause of her kidney failure is not known, nor do we know for sure which was affected first, her heart or her kidneys.  Her best option now would be a biventricular pacemaker implant, the earliest she would get an appointment with IJN again would be in 2 weeks. We can only get a complete picture of her hearts condition then , so we are all hoping for the very best. It is quite depressing when all were focus on her kidney failure, that nobody assessed her heart function and now it has gone into a severe degree of cardiac failure. The guilt of negligence will haunt us for life but we still have to strive to give her the very best now.

On a brighter side of life, my dog gave birth to 7 puppies. It really was an exciting moment for all of us at home.  Now we have 10 dogs at home. =.= Seriously, anyone out there wanna pet to add some excitement in your lives? Only, you may need to undergo an interrogation  session with my sister. 



Currently on my study break but that seems to be the only thing I havent been doing. Couldnt be bothered really but I still have to do what I have to for myself. Gaahh.. 


5 thought(s):

Nishikanta September 28, 2012 at 12:42 PM  

Hey. Just came across your blog. Hope your sister gets well soon. Convey my best wishes please.
Dont get down on yourself.

Nishikanta

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